?Maddex Dante Quilala? Born April 7th at 2:53am. Weighing 5lbs 1oz. Length of 17 3/4 inches. Maddex – My son, God has been gracious and generous. Dante – Steadfast, Enduring (this is my dads name) Here’s some promised pictures of our adorable little fighter. I’ll be updating more soon. Please keep praying as he hangs on in the NICU.
NICU and health update— Maddex has no problems eating. The very serious problems are reoccurring Apnea (he holds his breath and needs stimulation to resuscitate, does not resuscitate on his own), unexplained bruising in places he didn’t have bruises from birth (low white blood cell count), low blood sugar. These are potential diabetes markers, however also could just be high stress. He has to have at least 7 days with no apnea, as it’s a super high risk of SIDS since he hasn’t resuscitated on his own especially. Dr says all of this could simply be because of his traumatic birth, his loss of oxygen many times thru the birth, and the fact that he was pulled from the birth canal and bruised by the doctor as the last attempt to save him because he wasn’t breathing (there was no time for c-section)… it most likely will all resolve itself, but he’s highly stressed and unstable right now. Lastly, he hasn’t pooped on his own, which is also a sign of stress. While not entirely serious, they had to give him a suppository which is pretty abnormal considering how much he’s eaten since birth. They did an assessment on his rectum and bowels, all looks fine, so we’re hoping the suppository kicks in. Thanks for prayers ?
The girls aren’t allowed to visit Maddex at all so they haven’t met him and won’t meet him until he’s discharged. I’ve been here for 4 days now, I’m discharged tomorrow. But they came to visit me in my room and it was much needed! They’re having a hard time understanding why they can’t meet brother, prayers for these cuties would also be appreciated!
We are feeding tube free! He never had a problem eating, the tube was more just a precautionary, but it’s uncomfortable so we’re glad to be free of it! Maddex had a massive poo, which honestly cleared up what seemed to be a ton of his initial issues. His blood sugars have been stable, and he didn’t have any apnea through the night! The drs are hoping he was holding his breath because of straining to poop ??♀️
Next order of prayers for the Quilala’s — Aria is currently at urgent care with my mom for a pretty serious asthma episode. Guys, when it rains it pours sometimes ?? my heart is torn in a million places. She’ll be fine, but anytime your kids need you and you can’t be there or do anything to ease their pain is just the most heart wrenching feeling…